Duchenne Data FoundationDuchenne Data Foundation

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Category Archives: News

Duchenne Data Foundation   →  News
C-Path’s D-RSC and DDF Announce Collaboration to Advance DMD Solutions
Author By Suzie-Ann BakkerPosted on 10/08/202329/08/2023

C-Path’s D-RSC and DDF Announce Collaboration to Advance DMD Solutions

C-Path’s Duchenne Regulatory Science Consortium and Duchenne Data Foundation Announce Collaboration to Advance Solutions for Duc...
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Publication of Duchenne Map ECRD Abstract in the Orphanet Journal of Rare Diseases
Author By Suzie-Ann BakkerPosted on 14/06/202314/06/2023

Publication of Duchenne Map ECRD Abstract in the Orphanet Journal of Rare Diseases

We are thrilled to announce that the Duchenne Map ECRD abstract has been published in the prestigious Orphanet Journal of Rare Dis...
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Duchenne Patient Academy 2022 Applications Now Open
Author By Suzie-Ann BakkerPosted on 11/10/202210/11/2022

Duchenne Patient Academy 2022 Applications Now Open

Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the in...
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World Duchenne Awareness Day
Author By Katerina TzimaPosted on 05/09/202205/09/2022

WORLD DUCHENNE AWARENESS DAY 2022

Official online event 2022 Women & Duchenne Every year, during the World Duchenne Awareness Day, we highlight important...
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Duchenne Patient Academy 2022
Author By Suzie-Ann BakkerPosted on 19/07/202219/07/2022

Duchenne Patient Academy 2022

This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online  training for Duchenne an...
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Author By Katerina TzimaPosted on 25/05/202223/09/2022

Duchenne Siblings Webinar

The Duchenne Data Foundation is organizing a webinar on Duchenne Siblings. This webinar is part of the Duchenne and Becker Digital...
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Author By Katerina TzimaPosted on 21/04/202221/04/2022

The daily life of people living with Duchenne Muscular Dystrophy and their families

While assuring medical assistance for people living with Duchenne Muscular Dystrophy (DMD) is extremely important, all aspects of...
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Author By Katerina TzimaPosted on 04/03/202214/04/2022

Duchenne Emergency Program activated for Ukrainian Duchenne and Becker MD families

The Duchenne Data Foundation and the World Duchenne Organization are staying close to the families affected by Duchenne and Becker...
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Author By Katerina TzimaPosted on 26/01/202215/02/2022

Duchenne Map presents personalized clinical trial finder

Duchenne Map is an online platform built to centralize important information and connect the different stakeholders of the DM...
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Author By Katerina TzimaPosted on 18/01/202215/02/2022

New Board of Directors member

The Duchenne Data Foundation welcomes Arjen Bergsma as Board Member Arjen Bergsma is currently working as programme officer of...
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Categories

  • ADC Program 1
  • Careers 2
  • Data 5
  • DMD Emergency Program 2
  • Duchenne and Becker Digital Program 1
  • Duchenne CAB 5
  • Duchenne Data Repository 1
  • Duchenne Map 2
  • Duchenne Patient Academy 13
  • ERDERA 1
  • EU Projects 8
  • News 32
  • Social Duchenne 2
  • Uncategorized 1
  • WDAD 1

Recent Posts

  • Applications now open for Duchenne Patient Academy 202404/11/2024
  • Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!18/10/2024
  • BIND Project secures funding to continue genotype phenotype correlation of DMD/BMD brain18/09/2024
  • Launch of the ERDERA partnership16/09/2024
  • iMM Joins the MAGIC Consortium to Advance Research on Muscular Dystrophies07/06/2024

Tags

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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