Duchenne Data FoundationDuchenne Data Foundation

Bringing data to life for care and a cure

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Category Archives: News

Duchenne Data Foundation   →  News
Duchenne Patient Academy 2022 Applications Now Open
Author By Suzie-Ann BakkerPosted on 11/10/202210/11/2022

Duchenne Patient Academy 2022 Applications Now Open

Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the in...
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World Duchenne Awareness Day
Author By Katerina TzimaPosted on 05/09/202205/09/2022

WORLD DUCHENNE AWARENESS DAY 2022

Official online event 2022 Women & Duchenne Every year, during the World Duchenne Awareness Day, we highlight important...
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Duchenne Patient Academy 2022
Author By Suzie-Ann BakkerPosted on 19/07/202219/07/2022

Duchenne Patient Academy 2022

This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online  training for Duchenne an...
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Author By Katerina TzimaPosted on 25/05/202223/09/2022

Duchenne Siblings Webinar

The Duchenne Data Foundation is organizing a webinar on Duchenne Siblings. This webinar is part of the Duchenne and Becker Digital...
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Author By Katerina TzimaPosted on 21/04/202221/04/2022

The daily life of people living with Duchenne Muscular Dystrophy and their families

While assuring medical assistance for people living with Duchenne Muscular Dystrophy (DMD) is extremely important, all aspects of...
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Author By Katerina TzimaPosted on 04/03/202214/04/2022

Duchenne Emergency Program activated for Ukrainian Duchenne and Becker MD families

The Duchenne Data Foundation and the World Duchenne Organization are staying close to the families affected by Duchenne and Becker...
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Author By Katerina TzimaPosted on 26/01/202215/02/2022

Duchenne Map presents personalized clinical trial finder

Duchenne Map is an online platform built to centralize important information and connect the different stakeholders of the DM...
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Author By Katerina TzimaPosted on 18/01/202215/02/2022

New Board of Directors member

The Duchenne Data Foundation welcomes Arjen Bergsma as Board Member Arjen Bergsma is currently working as programme officer of...
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Author By Katerina TzimaPosted on 20/12/202115/02/2022

Duchenne Data Platform, the first patient-led registry to achieve a FAIR status

Duchenne Parent Project in the Netherlands announced that their patient-led online registry (The Duchenne Data Platform) has succe...
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Duchenne Patient Academy 2021
Author By Suzie-Ann BakkerPosted on 18/10/202119/11/2021

Duchenne Patient Academy 2021

The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is launching the 4th edition of the Duchenne...
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Categories

  • Careers 2
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  • Duchenne and Becker Digital Program 1
  • Duchenne CAB 5
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  • Duchenne Patient Academy 10
  • EU Projects 2
  • News 30
  • Social Duchenne 2
  • Uncategorized 2
  • WDAD 1

Recent Posts

  • Help has no borders - The DMD Emergency Program DocumentaryHelp has no borders – The DMD Emergency Program Documentary28/02/2023
  • Applications for Duchenne Centers Accreditation now openApplications for Duchenne Centers Accreditation now open21/02/2023
  • Duchenne Patient Academy 2022 successfully concludedDuchenne Patient Academy 2022 successfully concluded08/12/2022
  • Poster session DPA 2022Submit Poster for Duchenne Patient Academy 202228/10/2022
  • Duchenne Patient Academy 2022 Applications Now OpenDuchenne Patient Academy 2022 Applications Now Open11/10/2022

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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