Duchenne Data FoundationDuchenne Data Foundation

Bringing data to life for care and a cure

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Tag Archives: Projects

Duchenne Data Foundation   →  Projects
Author By Katerina TzimaPosted on 06/10/202115/02/2022

First research paper – BIND Project

BIND researchers provide a model for studying learning and behaviour challenges in Duchenne MD The presence and severity of lea...
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Author By Nicoletta MadiaPosted on 15/02/202115/02/2022

Duchenne Emergency and Capacity Building Program

Duchenne Data Foundation and the World Duchenne Organization start the Duchenne Emergency and Capacity Building Program FIRST A...
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Author By Suzie-Ann BakkerPosted on 29/01/202015/02/2022

Large international project to study dystrophin in the brain in DMD/BMD launched

The BIND project is the first project of this scale to improve characterisation of brain involvement in Duchenne an...
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Author By Nicoletta MadiaPosted on 07/09/201915/02/2022

Psychosocial International Educational Program for DMD and BMD

Just like anyone else, boys with Duchenne and Becker have a whole life with possibilities ahead of them. Quality of life is really...
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Categories

  • Careers 2
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Recent Posts

  • The daily life of people living with Duchenne Muscular Dystrophy and their families21/04/2022
  • Duchenne Emergency Program activated for Ukrainian Duchenne and Becker MD families04/03/2022
  • Duchenne Map presents personalized clinical trial finder26/01/2022
  • New Board of Directors member18/01/2022
  • Duchenne Data Platform, the first patient-led registry to achieve a FAIR status20/12/2021

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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