Board & Staff

Board Members

The Duchenne Data Foundation board consists of experts in the field of Duchenne muscular dystrophy, data collection and analysis, regulations and policy.

George Paliouras, PhD

Father of a boy with Duchenne Muscular Dystrophy. Computer Science researcher at NCSR “Demokritos”, Greece. Research areas: Artificial Intelligence, Machine Learning, Data Analytics, Precision Medicine.

Sheila Vasconcelos

Board member
Mother of Giovanna and Rafael who has Duchenne Muscular Dystrophy. Public relations, postgraduate in business and finishing a new degree in administration. One of the founders of the largest muscular dystrophy patient organizations in Brazil.

Arjen Bergsma

Board Member
Background in biomedical engineering. He is currently working as a programme officer in medical technology at the domain of Applied and Engineering Sciences of the Dutch Research Council (NWO).

B.S.Ajaikumar, MD

Board Member
Α doctorpreneur and the Executive Chairman of HealthCare Global Enterprises Ltd. He is a radiation and medical oncologist with over 40 years of experience.

Rob Schreur

Board Member
Father of a daughter, Lizanne, with Duchenne Muscular Dystrophy. Background in Economics at Tilburg University, Law at Maastricht University and Risk Management at New York University-Stern School of Business. His most current professional role is Chief Investment Officer.


Alexandros Nousias

Data Protection & Governance, Digital Ethics & Law
Data strategy, protection and governance at Duchenne Data Foundation, Digital ethics and law at BIND project

Christos Koziaris

Information Security Officer
Responsible for carrying DDF's vision on privacy and security including the processes, governance, and staff training.

Elvina Sakellariou

Operations Officer and Research Project Manager
Implementing operational policies and procedures. Managing collaborative projects related to DMD data.

George Marzelas

Financial Controller
Coordinating the Financial Accounting functions. Track and report income & expenditures/projects spend, perform monthly accounting and control financial transactions.

Jeroen van der Werf

Data Protection Officer
Monitors the legal processing of personal data within the organisation, to ensure privacy legislation is applied correctly.

Katerina Tzima

Administration Manager
Planning and overseeing management and administration activities in the Duchenne Data Foundation.

Nicoletta Madia

Project Manager
Project Manager in various awareness-raising internal projects at Duchenne Data Foundation.

Reli Todea

Technical Officer
Project Manager Duchenne Data Repository. Enabling collection, curation and publication of DMD and BMD data.

Sally Hofmeister

Duchenne CAB Coordinator
Mother of an adult with Duchenne. Coordinator of the Duchenne Community Advisory Board (CAB).

Sergiu Siminiuc

Technical Officer
Building and managing Duchenne Data Repository & Duchenne Map. Collecting, optimizing & converting raw data to analyzable data

Suzie-Ann Bakker

Project & Communication Manager
Developing and managing Duchenne Patient Academy. Facilitate on-boarding and population of data in Duchenne Map.