George Paliouras, PhD
Chairman
Father of a boy with Duchenne Muscular Dystrophy. Computer Science researcher at NCSR “Demokritos”, Greece. Research areas: Artificial Intelligence, Machine Learning, Data Analytics, Precision Medicine.
Sheila Vasconcelos
Board member
Mother of Giovanna and Rafael who has Duchenne Muscular Dystrophy. Public relations, postgraduate in business and finishing a new degree in administration. One of the founders of the largest muscular dystrophy patient organizations in Brazil.
Arjen Bergsma
Board Member
Background in biomedical engineering. He is currently working as a programme officer in medical technology at the domain of Applied and Engineering Sciences of the Dutch Research Council (NWO).
B.S.Ajaikumar, MD
Board Member
Α doctorpreneur and the Executive Chairman of HealthCare Global Enterprises Ltd. He is a radiation and medical oncologist with over 40 years of experience.
Alexandros Nousias
Data Protection & Governance, Digital Ethics & Law
Data strategy, protection and governance at Duchenne Data Foundation, Digital ethics and law at BIND project
Christos Koziaris
Information Security Officer
Responsible for carrying DDF's vision on privacy and security including the processes, governance, and staff training.
Elvina Sakellariou
Operations Officer and Research Project Manager
Implementing operational policies and procedures. Managing collaborative projects related to DMD data.
George Marzelas
Financial Controller
Coordinating the Financial Accounting functions. Track and report income & expenditures/projects spend, perform monthly accounting and control financial transactions.
Jeroen van der Werf
Data Protection Officer
Monitors the legal processing of personal data within the organisation, to ensure privacy legislation is applied correctly.
Nicoletta Madia
Project Manager
Project Manager in various awareness-raising internal projects at Duchenne Data Foundation.
Sergiu Siminiuc
Technical Officer
Building and managing Duchenne Data Repository & Duchenne Map. Collecting, optimizing & converting raw data to analyzable data
Suzie-Ann Bakker
Project & Communication Manager
Developing and managing Duchenne Patient Academy. Facilitate on-boarding and population of data in Duchenne Map.