PROJECT OVERVIEW

The Duchenne Data Foundation, in collaboration with the World Duchenne Organization has launched in 2020 the DMD Emergency program to support local patient organizations and communities dealing with unexpected emergencies. Unforeseen situations, can have serious impact on people living with Duchenne and Becker Muscular Dystrophy and their families.  In addition to initial aid, the program aims to provide long lasting support to the community.

The support offered from this initiative can vary, from first aid material to emergency funds and medical equipment depending on the needs of the community.

To this day, support has been provided to the Lebanese DMD/BMD community after the Beirut Blast, and is currently setting up support for the families affected by the Ukrainian conflict.

For more information on the emergency program, please contact Nicoletta Madia

 

 

Our support to the community

The entire world community is experiencing hours of great agony related to the ongoing conflict in Ukraine. The impact is even greater on families who have children with complex diseases such as Duchenne and Becker muscular dystrophy.

The World Duchenne Organization is collecting funds to provide resources and support to patient organizations that are coordinating refugees and local families with Duchenne and Becker muscular dystrophy.

In the year of 2020 in Lebanon, the effects of the large explosion ‘Beirut Blast’ at the city port and the Covid-19 pandemic resulted in an emergency situation. Many families needed medical equipment to take care of their children suffering from DMD/BMD.

Aida Adra, Founding member, LAND for Hope Lebanon

“It was so smooth to handle the donation, and we were so excited to see what we have for our kids, like Christmas gifts. Thank you to everyone who participated in this operation. Proud to be a part and member of the World Duchenne Organization”