The Duchenne Data Foundation (DDF) works in close collaboration with the World Duchenne Organization (WDO) to achieve the best possible outcomes for the global dystrophinopathy community. This includes people living with Duchenne and Becker Muscular Dystrophy (DMD and BMD), as well as people carrying the Duchenne and/or Becker gene mutation.
Making an impact for the DMD community
DDF brings together all sources of data related to dystrophinopathies, to make an impact for the global DMD community. We do this by building innovative approaches to connecting data, and to promote knowledge sharing that will form our strategy into the future. The Duchenne Data Foundation, has also endorsed since 2019 the FAIR Data Declaration of the World Duchenne Organization.
Our strategic direction is built around four key pillars:
We lead and support a variety of internal, European and collaborative projects to improve the world of dystrophinopathies.