The CommunicAction project, developed after the Duchenne Patient Academy 2021, is a communication project aiming to support and educate people living with Duchenne and Becker Muscular dystrophy.The project will be launched in 2022.
Support and educate people living with Duchenne and Becker Muscular Dystrophy.
The project will be addressed to the Duchenne families as well as other stakeholders associated with DMD. Through the creation of differrent types of communication materials, such as podcasts, interviews and communication material, a plethora of relevant topics will be discussed. This includes topics such care, research, living with DMD/BMD, advocacy and many other areas of interest coming from the community.
For more information on the communicaction project and the activities, please contact the project manager, Nicoletta Madia
The project is supported by Sarepta and PTC Therapeutics.