Data for Cure and Care
A collective initiative
to promote understanding
Duchenne Data Foundation is a worldwide collaboration in order to enhance the understanding of the course of Duchenne Muscular Dystrophy (DMD) and Becker Muscular Dystrophy (BMD), the effects of treatments, the needs and preferences of DMD/BMD patients and all other aspects relevant to the lives of DMD/BMD patients.
Mirjam Franken-Verbeek, Ir
Founder & Board member
Mirjam is a mother of a 20-year old son, Ralph, with DMD. She has a background in Human Nutrition at the Wageningen University. Shortly after the diagnosis of Ralph’s disease in 2002, Mirjam engaged in voluntary work for Duchenne Parent Project the Netherlands (DPP). Since 2006 she was involved as a board member of DPP Netherlands. Since 2015 she works as a project manager for this foundation.
Georgios Paliouras, PhD
Father of a boy with Duchenne Muscular Dystrophy. Computer Science researcher at NCSR “Demokritos”, Greece. Research areas: Artificial Intelligence, Machine Learning, Data Analytics, Precision Medicine.