PROJECT OVERVIEW

Training for patient advocates

The Duchenne Patient Academy (DPA) is setting a strong patient advocacy base for the Duchenne and Becker community. Since it launch in 2018, this training for Duchenne patient advocates is training over 140 patient advocates in 52 countries. Together with other DMD patient organisations, DPA is connecting leading experts in their fields in a week-long intensive training and capacity building programme. Our focus is to contribute a unified and strong voice to coordinate the global advocacy strategy of the community.

Coordinating the global Duchenne strategy

Connecting over 100 patient advocates from 52 countries throughout the world, the 2020 edition of Duchenne Patient Academy (DPA) can be seen as one of the leading global Duchenne and Becker MD events. Due to COVID, the 2020 DPA was taking place virtually. The DPA educational training aims to equip patient advocates with the tools, knowledge and experience to better represent and serve Duchenne and Becker muscular dystrophy. Topics such research, care, policy-making, regulations and awareness are discussed.

For who is this training?

It will be of particular interest to people affected by Duchenne or Becker muscular dystrophy, patient organisations, researchers and clinicians. Patient advocates do not have to be connected to a patient organisation.

How can I apply?

Those interested to join can complete an application form with motivation. This application will be reviewed by the DDF Board. Visit the website from the Duchenne Patient Academy for more information about application openings and procedures.

What can I learn?

Patient advocates accepted into the programme will benefit from expert speakers and participate in the global dialogue, receiving training in fundraising, science, policy, regulations, clinical trials, and networking opportunities. 

Applications

Applications for the programme will open mid September. Find out more about the programme and application procedures here:

www.duchennepatientacademy.org

52

Countries from all over the world are involved in this training opportunity

39

Connected global Duchenne and Becker patient organisations

140+

Duchenne Patient Academy alumni are still connected and sharing knowledge