Training for patient advocates
The Duchenne Patient Academy (DPA) is setting a strong patient advocacy base for the Duchenne and Becker community. Since its launch in 2018, the academy has trained over 500 patient advocates in 52 countries. Together with other DMD patient organizations, DPA is connecting leading experts in their fields in a week-long intensive training and capacity building program. Our focus is to contribute to a unified and strong voice to coordinate the global advocacy strategy of the community.
For who is this training?
It will be of particular interest to people affected by Duchenne or Becker muscular dystrophy, patient organizations, researchers and clinicians. Patient advocates do not have to be connected to a patient organization.
How can I apply?
Those interested to join can complete an application form with a motivation letter. This application will be reviewed by the DDF Board. Visit the Duchenne Patient Academy website for more information about application openings and procedures.
What can I learn?
Patient advocates accepted into the programme will benefit from expert speakers and participate in the global dialogue. Consequently, participants will receive training in fundraising, science, policy, regulations, clinical trials, and networking opportunities.