The Duchenne and Becker Digital Program, builds on the insights and needs provided by the DMD global community. It consists of a series of digital events and webinars where we invite experts and representatives of organizations from different countries to take a deep dive into topics relevant for all patients and patient organizations.  All the webinars are published on the Duchenne Data Foundation YouTube channel with Spanish subtitles.

Some of the previous webinars:

Duchenne Siblings, Insights, initiatives and challenges

Communication – building and online presence

Community building: experiences from Russia, Chile, Australia

For more information on the Duchenne and Becker Digital Program, please contact the coordinators of the project, Nicoletta Madia: [email protected] and Suzie-Ann Baker: [email protected].


Learn more abour our other projects supporting the dystrophinopathy community.