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Lisbon, Portugal – The MAGIC Consortium is proud to announce the participation of Instituto de Medicina Molecular João Lobo Ant...
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The World Duchenne Organization and Duchenne Data Foundation are happy to announce the successful conclusion of Duchenne Patient A...
![Duchenne-Patient-Academy-2023](https://www.duchennedatafoundation.org/wp-content/uploads/2023/10/Duchenne-Patient-Academy-2023_Facebook-scaled.jpg)
World Duchenne Organization and Duchenne Data Foundation are thrilled to announce that applications for the highly anticipated Duc...
![C-Path’s D-RSC and DDF Announce Collaboration to Advance DMD Solutions](https://www.duchennedatafoundation.org/wp-content/uploads/2023/08/C-Paths-D-RSC-and-DDF-Announce-Collaboration-to-Advance-DMD-Solutions-scaled.jpg)
C-Path’s Duchenne Regulatory Science Consortium and Duchenne Data Foundation Announce Collaboration to Advance Solutions for Duc...
![MAGIC Project: Accelerating Development of Genetic Therapies for Muscular Dystrophies](https://www.duchennedatafoundation.org/wp-content/uploads/2023/07/MAGIC_Visual-wide-scaled.jpg)
London, July 11, 2023 – We are thrilled to announce the launch of the groundbreaking project “MAGIC” (Next-generation Models...
![Publication of Duchenne Map ECRD Abstract in the Orphanet Journal of Rare Diseases](https://www.duchennedatafoundation.org/wp-content/uploads/2023/06/Publication-of-Duchenne-Map-ECRD-Abstract-in-the-Orphanet-Journal-of-Rare-Diseases.png)
We are thrilled to announce that the Duchenne Map ECRD abstract has been published in the prestigious Orphanet Journal of Rare Dis...
![DDF and EBRAINS collaboration](https://www.duchennedatafoundation.org/wp-content/uploads/2023/06/DDF-EBRAINS_Collaboration-1-scaled.jpg)
Veenendaal, May 25 2023 – The Duchenne Data Foundation (DDF) and EBRAINS are delighted to announce their collaboration and coord...
![DMD Emergency Program](https://www.duchennedatafoundation.org/wp-content/uploads/2023/04/DMD-Emergency-Ukraine.jpg)
The DMD Emergency Program is proud to announce the successful delivery of humanitarian aid to people living with Duchenne Muscular...
![Help has no borders - The DMD Emergency Program Documentary](https://www.duchennedatafoundation.org/wp-content/uploads/2023/02/STILL-1.jpg)
Amsterdam February 28, 2023 - We are thrilled to announce the documentary Help Has No Borders as part of the DMD Emergency program...
![Applications for Duchenne Centers Accreditation now open](https://www.duchennedatafoundation.org/wp-content/uploads/2023/02/ADC_Application-announcement.jpg)
Amsterdam, 17 February 2023 – We are thrilled to announce that the applications for Duchenne Centers Accreditation are now open...
![Duchenne Patient Academy 2022 successfully concluded](https://www.duchennedatafoundation.org/wp-content/uploads/2022/12/DPA2022_Overview2-scaled.jpg)
December 8, 2022 – Duchenne Patient Academy successfully concludes 2022 edition. The World Duchenne Organization and Duchenne Da...
![Poster session DPA 2022](https://www.duchennedatafoundation.org/wp-content/uploads/2022/10/DPA_Banner_Poster-session-scaled.jpg)
Do you have an innovative or breakthrough project related to the Duchenne field that you wish to share with the global community?...
![Duchenne Patient Academy 2022 Applications Now Open](https://www.duchennedatafoundation.org/wp-content/uploads/2022/10/Duchenne-Patient-Academy-2022-Applications-Open.jpg)
Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the in...
![FAIR DATA](https://www.duchennedatafoundation.org/wp-content/uploads/2022/09/fair.png)
Duchenne Parent Project and European Reference Network for Neuromuscular Diseases can now begin leveraging their FAIR data to bene...
![World Duchenne Awareness Day](https://www.duchennedatafoundation.org/wp-content/uploads/2022/09/wdad2022_event_banner-scaled-1.jpg)
Official online event 2022 Women & Duchenne Every year, during the World Duchenne Awareness Day, we highlight important...
![Duchenne Patient Academy 2022](https://www.duchennedatafoundation.org/wp-content/uploads/2022/07/DPA2022_Save-the-date.jpg)
This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne an...
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Bringing Data to life In Duchenne Data Foundation (DDF), we strive to bring data to life to improve research and care for dystr...
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A diagnosis of Duchenne impacts the full family. Dr. Moriconi, psychologist in Fondazione Policlinico Universitario A. Gemelli IRC...
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The Duchenne Data Foundation is organizing a webinar on Duchenne Siblings. This webinar is part of the Duchenne and Becker Digital...
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While assuring medical assistance for people living with Duchenne Muscular Dystrophy (DMD) is extremely important, all aspects of...
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The Duchenne Data Foundation and the World Duchenne Organization are staying close to the families affected by Duchenne and Becker...
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Duchenne Map is an online platform built to centralize important information and connect the different stakeholders of the DM...
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The Duchenne Data Foundation welcomes Arjen Bergsma as Board Member Arjen Bergsma is currently working as programme officer of...
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Duchenne Parent Project in the Netherlands announced that their patient-led online registry (The Duchenne Data Platform) has succe...