Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the international advocacy agenda for people living with dystrophinopathies. Applications for Duchenne Patient Academy 2022 are now open.

Are you a Duchenne and/or Becker MD patient advocate? Do you have a serious interest in the unique challenges of patient advocacy? Join us December 1 – 3 at Duchenne Patient Academy and receive training and updates to set a strong basis for current and future global advocacy.

As the dystrophinopathy field seeks to empower patient representatives to advocate for better quality and quantity of life, collaborating to educate the global community is essential. To help support this goal, we are excited to announce that applications for the 2022 edition of Duchenne Patient Academy are now open.

Title: Duchenne Patient Academy 2022
Date: December 1 – 3, 2022
Time: 15:00 – 19:00 Central European Time
Location: Online

Extended deadline: Applications will be open until November 20, 12:00 Central European Time.

Once again, World Duchenne Organization and Duchenne Data Foundation are partnering to enhance and expand knowledge. Duchenne Patient Academy prepares to welcome 150 highly motivated patient representatives.

Duchenne Patient Academy 2022 Applications

The virtual training will take place December 1-3, 2022 from 15:00 to 19:00 Central European Time. You can apply by completing the form above. Proficient knowledge of the English language is required to follow and participate in Duchenne Patient Academy.

Program theme

This year’s program theme is Changing Perspectives. The program is designed to balance the latest information with sharing of experience on topics that are of interest to the community. The 2022 DPA curriculum is built on the following topics: Research & Innovation, Advocacy & Networking, and Care & Allied Therapies.

First, a session is started with a landmark presentation by an expert in the field. Secondly, participants will listen to the local experiences regarding this theme, gaining a broader understanding of possible challenges and solutions. Lastly, all speakers will join the interactive panel discussion, setting the strategic path for the future. Participants will learn:

  1. How to make strategic decisions to scale up their organization
  2. Be updated on clinical research and developments
  3. Implement learnings from the advocacy community to enhance the lives of people with dystrophinopathy in their country

Poster session

In addition to the interactive sessions, there will be a poster session where selected posters will be presented. We encourage patient representatives, researchers, academics, and healthcare professionals to submit a poster abstract. Poster submission is not limited to participants. More information on how to submit a poster abstract will be available soon.

We are looking forward to a fruitful Duchenne Patient Academy 2022, delivering high-quality and relevant skills training to Duchenne patient advocates.

For inquiries on the application please contact Suzie-Ann Bakker.

About Duchenne Patient Academy

Duchenne Patient Academy (DPA) is a collaboration between the Duchenne Data Foundation and World Duchenne Organization. DPA aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. Since its launch in 2017, DPA has trained 500+ DMD and BMD patient representatives from over 50 countries. The Academy connects leading experts in their fields in an intensive training and capacity building program. The aim is to contribute a unified and strong voice to coordinate the global advocacy strategy of the community.