The Duchenne Data Foundation is organizing a webinar on Duchenne Siblings. This webinar is part of the Duchenne and Becker Digital Program, created to discuss in depth subjects that were raised from the community during the Duchenne Patient Academy.
In this webinar, we will discuss the insights, challenges and feedback received from the community in addressing Duchenne Siblings. We will also share successful actions and programs that are in place to support them. Finally a psychotherapist specialized in Duchenne Siblings will present her perspective and feedback.
Date: June 3, 2022
Time: 15:00 – 16:00 CEST
Speakers: Nicoletta Madia – World Duchenne Organization, Peter Duffy and Hazel Weaver – Duchenne Siblings Network, Federica Moriconi – Psychotherapist, Fondazione Policlinico Universitario Agostino Gemelli IRCCS.
Agenda:
15:00 Katerina Tzima – Welcome/Tech introduction
15:05 Nicoletta Madia – Welcome, insights of the Siblings survey
15:15 Peter Duffy & Hazel Weaver – Learnings from the Duchenne Siblings Network
15:35 Federica Moriconi – A psychotherapist’s perspective on Duchenne Siblings (recorded)
15:50 Questions & Discussion
16:00 End of webinar
Please note that limited places are available for this event so register now to reserve your spot!
For more information on the project and the webinar you can contact Suzie-Ann Baker ([email protected]) or Katerina Tzima ([email protected]).