The Duchenne Data Foundation is organizing a webinar on Duchenne Siblings. This webinar is part of the Duchenne and Becker Digital Program, created to discuss in depth subjects that were raised from the community during the Duchenne Patient Academy.

In this webinar, we will discuss the insights, challenges and feedback received from the community in addressing Duchenne Siblings. We will also share successful actions and programs that are in place to support them. Finally a psychotherapist specialized in Duchenne Siblings will present her perspective and feedback.

Date: June 3, 2022

Time: 15:00 – 16:00 CEST

Speakers: Nicoletta Madia – World Duchenne Organization, Peter Duffy and Hazel Weaver – Duchenne Siblings Network, Federica Moriconi – Psychotherapist, Fondazione Policlinico Universitario Agostino Gemelli IRCCS.

Agenda:

15:00     Katerina Tzima – Welcome/Tech introduction

15:05     Nicoletta Madia – Welcome, insights of the Siblings survey

15:15     Peter Duffy & Hazel Weaver – Learnings from the Duchenne Siblings Network

15:35     Federica Moriconi – A psychotherapist’s perspective on Duchenne Siblings (recorded)

15:50     Questions & Discussion

16:00     End of webinar

Please note that limited places are available for this event so register now to reserve your spot!

Recording is available here

For more information on the project and the webinar you can contact Suzie-Ann Baker ([email protected]) or Katerina Tzima ([email protected]).