New Board of Directors member

The Duchenne Data Foundation welcomes Sejal Thakrar as Board Member.

The Duchenne Data Foundation is expanding its Board of Directors and we are thrilled to announce that Sejal Thakrar has accepted the invitation.

Sejal has a son, Shiv, with Duchenne and they live in London, UK. Following his diagnosis in 2014, Sejal gave up her career as a Customer Intelligence Data Analyst Manager within the Telecommunications sector.

In January, 2015, along with her husband Manoj, they set up ‘Smile with Shiv’ to work closely with the Duchenne community. They focus their energy in raising awareness and funds for Duchenne charities, as well as voluntary advocacy work.

Sejal has used her experience as a Data Analyst to assist Duchenne UK. She participates mainly in the creation and analysis of surveys, in order to better understand what patients and caregivers want from care, research and clinical trials.