POSTER SESSION

Duchenne Patient Academy 2022 Poster session

The poster session was organized for first time during the Duchenne Patient Academy 2022 and provided an opportunity for patient organizations and researchers to present and discuss innovative projects in the field of Duchenne and Becker muscular dystrophy. Selected E-Posters were virtually presented by the authors during the innovation session of the training.

Eligible themes included:

  1. Care and therapies
  2. Data and registries
  3. Learning and education
  4. Social and behavioral

16 e-posters were received and 6 were presented during DPA 2022.

 

Scroll down to see an overview of all the winning and submitted posters.

To visualize the full abstract and a high-definition e-poster, click on the individual posters.

Winning Posters

Evaluating the performance of the Duchenne Video Assessment (DVA): ARISE, a Remote Study

EURO-NMD Registry Hub: Patient centered and interoperable registry hub for Rare Neuromuscular Diseases

Accredited Duchenne Centers Program: Achieving worldwide, uniform and up-to-date Duchenne care

Innovative FAIRification solution for a Rare Disease Patient-led Registry - Case Study: Duchenne Data Plaform

The Pioneer Project - Validation of passive exoskeletons in real life situations

The importance and use of Syde® wearable technology and Stride Velocity 95th Centile (SV95C) endpoint in Duchenne muscular dystrophy

All Posters

Duchenne Map

Patient preferences on decentralised clinical trial approaches

The Dutch Dystrophinopathy Database: facilitation of trial readiness and effective use of patient data

Improving Adherence Behaviour, Together