The Duchenne Data Foundation (DDF) works in close collaboration with the World Duchenne Organization (WDO) to achieve the best possible outcomes for the global dystrophinopathy community. This includes people living with Duchenne and Becker Muscular Dystrophy, as well as people carrying the Duchenne and/or Becker gene mutation.
DDF brings together all sources of data related to dystrophinopathies, to make an impact for the global community. We do this by building innovative approaches to connecting data, and to promote knowledge sharing that will form our strategy into the future. The Duchenne Data Foundation, has also endorsed since 2019 the FAIR Data Declaration of the World Duchenne Organization.