C-Path’s Duchenne Regulatory Science Consortium and Duchenne Data Foundation Announce Collaboration to Advance Solutions for Duc...
PROJECT OVERVIEW
We are thrilled to announce that the Duchenne Map ECRD abstract has been published in the prestigious Orphanet Journal of Rare Dis...
Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the in...
Official online event 2022 Women & Duchenne Every year, during the World Duchenne Awareness Day, we highlight important...
This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne an...
The Duchenne Data Foundation is organizing a webinar on Duchenne Siblings. This webinar is part of the Duchenne and Becker Digital...
While assuring medical assistance for people living with Duchenne Muscular Dystrophy (DMD) is extremely important, all aspects of...
The Duchenne Data Foundation and the World Duchenne Organization are staying close to the families affected by Duchenne and Becker...
Duchenne Map is an online platform built to centralize important information and connect the different stakeholders of the DM...
The Duchenne Data Foundation welcomes Arjen Bergsma as Board Member Arjen Bergsma is currently working as programme officer of...
Duchenne Parent Project in the Netherlands announced that their patient-led online registry (The Duchenne Data Platform) has succe...
The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is launching the 4th edition of the Duchenne...
BIND researchers provide a model for studying learning and behaviour challenges in Duchenne MD The presence and severity of lea...
The Duchenne CAB held its 7th meeting between April and July 2021. Due to the COVID- 19 pandemic, the meetings were again held vir...
Last March, the World Duchenne Organization in collaboration with the Duchenne Data Foundation organized the second Meet...
Every year, on the 7th of September during the World Duchenne Awareness Day, a different thematic is chosen to raise awareness for...
About DDF Duchenne Data Foundation is a worldwide collaboration to enhance the understanding of the course of Duchenne Muscular...
The Duchenne Data Foundation welcomes Dr. BS Ajai Kumar as Board Member Dr. Ajai Kumar is a doctorpreneur and the Executive Cha...
The Duchenne Data Foundation welcomes Klair Bayley as Board Member. The Duchenne Data Foundation is expanding its Board of Dire...
The Duchenne Data Foundation welcomes Rob Schreur as Board Member The Duchenne Data Foundation is expanding its Board of Direct...
Duchenne Data Foundation and the World Duchenne Organization start the Duchenne Emergency and Capacity Building Program FIRST A...
About DDF Duchenne Data Foundation is a worldwide collaboration in order to enhance the understanding of the course of Du...
International training for neuromuscular patient advocates ATHENS, Dec. 9, 2020 /Duchenne Data Foundation/ -- Duchenne Patient...
Duchenne Patient Academy works in partnership with leading DMD patient organisations to set a strong patient advocacy base for pat...