The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is launching the 4th edition of the Duchenne Patient Academy (DPA). In this intensive training session, patient advocates receive training and updates to build a strong base for current and future global advocacy.
Goal
Through connecting leading experts in their fields, Duchenne Patient Academy aims to contribute a unified and strong voice to coordinate the global advocacy strategy of the community. Participants develop a deeper understanding of the research, drug development, regulatory, policy and global frameworks in the DMD/BMD community that define best practices of international advocacy to drive research and care.
Details
From Tuesday November 30 to Saturday December 4, the Duchenne Patient Academy will consist of 2,5-hour webinars during the week, with a 4-hour training session on the Saturday. The final agenda, consisting of expert speaker presentations and interactive sessions, will be sent to the participants.
Application process
Application for Duchenne Patient Academy 2021 closes on November 9. Applicants can expect to receive a reply by mid November. Please note: the Duchenne Patient Academy has an English teaching policy.
Requirements
- Full participation in all webinars is required.
- Participants are required to prepare for the sessions by completing the assignments and pre-reads shared in advance.
- Estimated time commitment is 17 hours in total during the 5-day course including preparation.
- A good knowledge of English and a strong commitment is essential to participate in the training and discussions.
Duchenne Patient Academy
Duchenne Patient Academy works in partnership with leading DMD patient organizations to set a strong patient advocacy base for patient organizations and the Duchenne and Becker community at large. The previous edition of the Duchenne Patient Academy convened with over 120 participants from 52 countries.