World Duchenne Awareness Day 2021

Every year, on the 7th of September during the World Duchenne Awareness Day, a different thematic is chosen to raise awareness for people living with Duchenne. As always, the Duchenne Data Foundation supports the actions organized.

This year, for the World Duchenne Awareness day 2021, the World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event will be held on September 7 from 14:00 to 16:00 Central European Summer Time, and it will be accessible for everybody via Zoom.

During these 2 hours, various experts will share their experience and knowledge on adult life with Duchenne. Speakers include Prof. Ros Quinlivan, Dr. Jos Hendriksen, Nicoletta Madia, Elizabeth Vroom and Hlawulani Mkhabela. Apart from these, Duchenne adults from different parts of the world will share their experience of living with Duchenne.

Apart from being of interest to caregivers and people living with Duchenne MD, the event will be of particular interest to clinicians and other healthcare professionals, employers interested to hire people living with a disability, and government institutions.

For more information and to register, please click here