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Bringing data to life for care and a cure

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Category Archives: Duchenne CAB

Duchenne Data Foundation   →  Duchenne CAB
Author By Katerina TzimaPosted on 05/10/202115/02/2022

Report – 7th Duchenne CAB meeting

The Duchenne CAB held its 7th meeting between April and July 2021. Due to the COVID- 19 pandemic, the meetings were again held vir...
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Author By Sally HofmeisterPosted on 05/03/202115/02/2022

Report: 6th Duchenne CAB Meeting

The Duchenne CAB held its 6th meeting from 07 – 09 October 2020. Due to the COVID-19 pandemic, the meetings had to be held virtu...
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Author By Sally HofmeisterPosted on 11/08/202015/02/2022

Report: 5th Duchenne CAB Meeting

The Duchenne CAB held its 5th meeting from 13 – 15 May 2020. Due to the COVID-19 pandemic the meetings had to be held virtu...
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Author By Sally HofmeisterPosted on 15/12/201915/02/2022

Report: 4th Duchenne CAB Meeting

The Duchenne CAB held its 4thmeeting from 23 – 26 October in Amsterdam. This time we were able to welcome four companies, one of...
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Author By Sally HofmeisterPosted on 22/05/201915/02/2022

3rd Duchenne CAB Meeting

Amsterdam, May 15 – The Duchenne CAB held its 3rd meeting from 8 – 11 May in Amsterdam with a total of six companies atte...
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Categories

  • Careers 2
  • Data 2
  • Duchenne CAB 5
  • Duchenne Map 1
  • Duchenne Patient Academy 6
  • EU Projects 2
  • News 26
  • Social Duchenne 2

Recent Posts

  • The daily life of people living with Duchenne Muscular Dystrophy and their families21/04/2022
  • Duchenne Emergency Program activated for Ukrainian Duchenne and Becker MD families04/03/2022
  • Duchenne Map presents personalized clinical trial finder26/01/2022
  • New Board of Directors member18/01/2022
  • Duchenne Data Platform, the first patient-led registry to achieve a FAIR status20/12/2021

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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