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Bringing data to life for care and a cure

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Category Archives: Data

Duchenne Data Foundation   →  Data
C-Path’s D-RSC and DDF Announce Collaboration to Advance DMD Solutions
Author By Suzie-Ann BakkerPosted on 10/08/202329/08/2023

C-Path’s D-RSC and DDF Announce Collaboration to Advance DMD Solutions

C-Path’s Duchenne Regulatory Science Consortium and Duchenne Data Foundation Announce Collaboration to Advance Solutions for Duc...
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DDF and EBRAINS collaboration
Author By Suzie-Ann BakkerPosted on 08/06/202308/06/2023

Promote Sharing of DMD Brain Data to Enhance Research: DDF & EBRAINS Collaboration

Veenendaal, May 25 2023 – The Duchenne Data Foundation (DDF) and EBRAINS are delighted to announce their collaboration and coord...
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Author By Katerina TzimaPosted on 22/06/202218/07/2022

Duchenne Data Repository, connecting and collecting dystrophinopathy data

Bringing Data to life In Duchenne Data Foundation (DDF), we strive to bring data to life to improve research and care for dystr...
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Author By Katerina TzimaPosted on 20/12/202115/02/2022

Duchenne Data Platform, the first patient-led registry to achieve a FAIR status

Duchenne Parent Project in the Netherlands announced that their patient-led online registry (The Duchenne Data Platform) has succe...
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Author By Katerina TzimaPosted on 02/09/202115/02/2022

Patient Organizations and FAIR Data Efforts to facilitate Research and Health Care

Last March, the World Duchenne Organization in collaboration with the Duchenne Data Foundation organized the second Meet...
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Categories

  • ADC Program 1
  • Careers 2
  • Data 5
  • DMD Emergency Program 2
  • Duchenne and Becker Digital Program 1
  • Duchenne CAB 5
  • Duchenne Data Repository 1
  • Duchenne Map 2
  • Duchenne Patient Academy 13
  • ERDERA 1
  • EU Projects 8
  • News 32
  • Social Duchenne 2
  • Uncategorized 1
  • WDAD 1

Recent Posts

  • Applications now open for Duchenne Patient Academy 202404/11/2024
  • Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!18/10/2024
  • BIND Project secures funding to continue genotype phenotype correlation of DMD/BMD brain18/09/2024
  • Launch of the ERDERA partnership16/09/2024
  • iMM Joins the MAGIC Consortium to Advance Research on Muscular Dystrophies07/06/2024

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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