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Tag Archives: World Duchenne Awareness Day

Duchenne Data Foundation   →  World Duchenne Awareness Day
Author By Katerina TzimaPosted on 01/09/202115/02/2022

World Duchenne Awareness Day 2021

Every year, on the 7th of September during the World Duchenne Awareness Day, a different thematic is chosen to raise awareness for...
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Author By Suzie-Ann BakkerPosted on 07/09/202015/02/2022

DDF supports World Duchenne Awareness Day

Today is World Duchenne Awareness Day. As of each year on September 7, the world raises global awareness on Duchenne and Becker mu...
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Recent Posts

  • The daily life of people living with Duchenne Muscular Dystrophy and their families21/04/2022
  • Duchenne Emergency Program activated for Ukrainian Duchenne and Becker MD families04/03/2022
  • Duchenne Map presents personalized clinical trial finder26/01/2022
  • New Board of Directors member18/01/2022
  • Duchenne Data Platform, the first patient-led registry to achieve a FAIR status20/12/2021

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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