Duchenne Data FoundationDuchenne Data Foundation

Bringing data to life for care and a cure

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Monthly Archives: August 2020

Duchenne Data Foundation   →  2020   →  August

Categories

  • Careers 2
  • Data 2
  • Duchenne CAB 5
  • Duchenne Map 1
  • Duchenne Patient Academy 6
  • EU Projects 2
  • News 26
  • Social Duchenne 2

Recent Posts

  • The daily life of people living with Duchenne Muscular Dystrophy and their families21/04/2022
  • Duchenne Emergency Program activated for Ukrainian Duchenne and Becker MD families04/03/2022
  • Duchenne Map presents personalized clinical trial finder26/01/2022
  • New Board of Directors member18/01/2022
  • Duchenne Data Platform, the first patient-led registry to achieve a FAIR status20/12/2021

Tags

Board of Directors Calls Careers daily life Emergency Program FAIR Data Projects Reports Survey Training World Duchenne Awareness Day

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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