Duchenne Data FoundationDuchenne Data Foundation

Bringing data to life for care and a cure

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Category Archives: Duchenne Patient Academy

Duchenne Data Foundation   →  Duchenne Patient Academy
Duchenne Patient Academy 2022 successfully concluded
Author By Suzie-Ann BakkerPosted on 08/12/202208/12/2022

Duchenne Patient Academy 2022 successfully concluded

December 8, 2022 – Duchenne Patient Academy successfully concludes 2022 edition. The World Duchenne Organization and Duchenne Da...
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Poster session DPA 2022
Author By Suzie-Ann BakkerPosted on 28/10/202203/11/2022

Submit Poster for Duchenne Patient Academy 2022

Do you have an innovative or breakthrough project related to the Duchenne field that you wish to share with the global community?...
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Duchenne Patient Academy 2022 Applications Now Open
Author By Suzie-Ann BakkerPosted on 11/10/202210/11/2022

Duchenne Patient Academy 2022 Applications Now Open

Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the in...
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Duchenne Patient Academy 2022
Author By Suzie-Ann BakkerPosted on 19/07/202219/07/2022

Duchenne Patient Academy 2022

This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online  training for Duchenne an...
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Author By Suzie-Ann BakkerPosted on 09/12/202115/02/2022

DMD community celebrates successful Duchenne Patient Academy 2021

Last week, the 5th edition of Duchenne Patient Academy has taken place virtually. More than 75 Duchenne and Becker MD patient advo...
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Duchenne Patient Academy 2021
Author By Suzie-Ann BakkerPosted on 18/10/202119/11/2021

Duchenne Patient Academy 2021

The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is launching the 4th edition of the Duchenne...
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Author By Suzie-Ann BakkerPosted on 09/12/202015/02/2022

DDF successfully concludes third Duchenne Patient Academy

International training for neuromuscular patient advocates ATHENS, Dec. 9, 2020 /Duchenne Data Foundation/ -- Duchenne Patient...
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Author By Suzie-Ann BakkerPosted on 26/10/202015/02/2022

Apply now for Duchenne Patient Academy 2020

Duchenne Patient Academy works in partnership with leading DMD patient organisations to set a strong patient advocacy base for pat...
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Author By Suzie-Ann BakkerPosted on 11/12/201915/02/2022

3rd Duchenne Patient Academy trains 80 patient advocates from 37 countries

Three years ago, the first Duchenne Patient Academy (DPA) was launched in Athens, Greece. This global patient advocacy initiative...
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Author By Suzie-Ann BakkerPosted on 19/10/201915/02/2022

Open call for Duchenne Advocates

Over the past years, the Duchenne world has been changing due to a fast evolving research and regulatory landscape. For this, the...
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Categories

  • Careers 2
  • Data 3
  • Duchenne and Becker Digital Program 1
  • Duchenne CAB 5
  • Duchenne Data Repository 1
  • Duchenne Map 1
  • Duchenne Patient Academy 10
  • EU Projects 2
  • News 30
  • Social Duchenne 2
  • Uncategorized 1
  • WDAD 1

Recent Posts

  • Duchenne Patient Academy 2022 successfully concludedDuchenne Patient Academy 2022 successfully concluded08/12/2022
  • Poster session DPA 2022Submit Poster for Duchenne Patient Academy 202228/10/2022
  • Duchenne Patient Academy 2022 Applications Now OpenDuchenne Patient Academy 2022 Applications Now Open11/10/2022
  • FAIR DATAFAIR Data Sharing Without Oversharing08/09/2022
  • World Duchenne Awareness DayWORLD DUCHENNE AWARENESS DAY 202205/09/2022

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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