Just like anyone else, boys with Duchenne and Becker have a whole life with possibilities ahead of them. Quality of life is really important. So when a boy with Duchenne, his family and the people around him make every effort to give him a good life and try to get everything out of it, this boy may have a life full of opportunities.
For this reason, Duchenne Data Foundation, will start an international educational program focused on psychosocial issues in Duchenne and Becker muscular dystrophy.
From the diagnosis to the adult life, we will follow a journey full of contents, storytelling, ideas, experiences able to make the difference for many people.
The project is supported by Sarepta Therapeutics, Ptc Therapeutics, Roche, Santhera, Italfarmaco.