About DDF Duchenne Data Foundation is a worldwide collaboration in order to enhance the understanding of the course of Du...
International training for neuromuscular patient advocates ATHENS, Dec. 9, 2020 /Duchenne Data Foundation/ -- Duchenne Patient...
Duchenne Patient Academy works in partnership with leading DMD patient organisations to set a strong patient advocacy base for pat...
Today is World Duchenne Awareness Day. As of each year on September 7, the world raises global awareness on Duchenne and Becker mu...
The Duchenne CAB held its 5th meeting from 13 – 15 May 2020. Due to the COVID-19 pandemic the meetings had to be held virtually...
The BIND project is the first project of this scale to improve characterisation of brain involvement in Duchenne an...
The Duchenne CAB held its 4thmeeting from 23 – 26 October in Amsterdam. This time we were able to welcome four companies, one of...
Three years ago, the first Duchenne Patient Academy (DPA) was launched in Athens, Greece. This global patient advocacy initiative...
Over the past years, the Duchenne world has been changing due to a fast evolving research and regulatory landscape. For this, the...
Just like anyone else, boys with Duchenne and Becker have a whole life with possibilities ahead of them. Quality of life is really...