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Category Archives: News

Duchenne Data Foundation   →  News
Author By Katerina TzimaPosted on 06/10/202115/02/2022

First research paper – BIND Project

BIND researchers provide a model for studying learning and behaviour challenges in Duchenne MD The presence and severity of lea...
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Author By Katerina TzimaPosted on 05/10/202115/02/2022

Report – 7th Duchenne CAB meeting

The Duchenne CAB held its 7th meeting between April and July 2021. Due to the COVID- 19 pandemic, the meetings were again held vir...
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Author By Katerina TzimaPosted on 02/09/202115/02/2022

Patient Organizations and FAIR Data Efforts to facilitate Research and Health Care

Last March, the World Duchenne Organization in collaboration with the Duchenne Data Foundation organized the second Meet...
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Author By Katerina TzimaPosted on 01/09/202115/02/2022

World Duchenne Awareness Day 2021

Every year, on the 7th of September during the World Duchenne Awareness Day, a different thematic is chosen to raise awareness for...
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Author By Katerina TzimaPosted on 12/07/202114/07/2021

Job Position: Software Engineer

About DDF Duchenne Data Foundation is a worldwide collaboration to enhance the understanding of the course of Duchenne Muscular...
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Author By Katerina TzimaPosted on 10/06/202115/02/2022

New Board of Directors member

The Duchenne Data Foundation welcomes Dr. BS Ajai Kumar as Board Member Dr. Ajai Kumar is a doctorpreneur and the Executive Cha...
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Author By Katerina TzimaPosted on 08/06/202115/02/2022

New Board of Directors member

The Duchenne Data Foundation welcomes Klair Bayley as Board Member. The Duchenne Data Foundation is expanding its Board of Dire...
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Author By Katerina TzimaPosted on 03/06/202115/02/2022

New Board of Directors member

The Duchenne Data Foundation welcomes Rob Schreur as Board Member The Duchenne Data Foundation is expanding its Board of Direct...
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Author By Nicoletta MadiaPosted on 15/02/202115/02/2022

Duchenne Emergency and Capacity Building Program

Duchenne Data Foundation and the World Duchenne Organization start the Duchenne Emergency and Capacity Building Program FIRST A...
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Author By Elvina SakellariouPosted on 03/02/202115/02/2022

Job Position: Data steward

About DDF  Duchenne Data Foundation is a worldwide collaboration in order to enhance the understanding of the course of Du...
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Recent Posts

  • DMD Emergency ProgramDMD Emergency Program Provides Aid to Duchenne Families in Ukraine26/04/2023
  • Help has no borders - The DMD Emergency Program DocumentaryHelp has no borders – The DMD Emergency Program Documentary28/02/2023
  • Applications for Duchenne Centers Accreditation now openApplications for Duchenne Centers Accreditation now open21/02/2023
  • Duchenne Patient Academy 2022 successfully concludedDuchenne Patient Academy 2022 successfully concluded08/12/2022
  • Poster session DPA 2022Submit Poster for Duchenne Patient Academy 202228/10/2022

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Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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