Our Projects
International project to assess and address learning and behaviour challenges in Duchenne & Becker muscular dystrophy.
Registry hub for all neuromuscular diseases, including undiagnosed patients, and connect with the existing ones.
Disease-specific data repository enabling collection, curation and publication of DMD and BMD data.
Training platform for patient advocates from the rare neuromuscular community an opportunity to sharpen their skills.
Duchenne Map: one place for all information about Duchenne muscular dystrophy.
Educational and awareness activities to address needs in the Duchenne community.