Duchenne Data FoundationDuchenne Data Foundation

Bringing data to life for care and a cure

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Research Style 2

Duchenne Data Foundation   →  Research Style 2

Research Style 2

Posters DPA

Brain Involvement iN Dystrophinopathies (BIND)

Posters DPA

Improving Adherence Behavior, Together

Posters DPA

The Dutch Dystrophinopathy Database

Patient preferences on decentralised clinical trial approaches

Posters DPA

Duchenne Map

Posters DPA

The pioneers project: validation of passive arm exoskeletons in real life situations

Posters DPA

Syde® wearable technology and Stride Velocity 95th Centile (SV95C) endpoint

Posters DPA

ARISE, a remote study

Posters DPA

EURO-NMD Registry Hub

Posters DPA

Innovative FAIRification solution for a Rare Diseases Patient-led Registry

Duchenne Data Foundation
We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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