FAIR Data for Dystrophinopathies

The Duchenne Data Foundation, has endorsed since 2019 the FAIR Data Declaration of the World Duchenne Organization.

Moreover, the Duchenne Data Foundation has created the Duchenne Data Repository FAIR by design. The Repository optimizes the reuse of dystrophinopathy data collected by different stakeholders, and assures that the data stored in its database is Findable (F), Accessible (A), Interoperable (I) and Reusable (R).