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Tag Archives: Survey

Duchenne Data Foundation → Survey

Author By Sergiu SiminiucPosted on 21/04/202221/04/2022

The daily life of people living with Duchenne Muscular Dystrophy and their families

While assuring medical assistance for people living with Duchenne Muscular Dystrophy (DMD) is extremely important, all aspects of...

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Successful Conclusion of Duchenne Patient Academy 202522/12/2025
Duchenne Patient Academy: Connecting DMD/BMD Patient Advocates of the Future📍 13–14 December 202515/12/2025
Duchenne Patient Academy 2025: Registrations are now open13/11/2025
Applications now open for Duchenne Patient Academy 202404/11/2024
Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!18/10/2024

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We bring together fragmented data pieces of the Duchenne and Becker muscular dystrophy (DMD/BMD) world and test innovative solutions, scaling them to make a global impact

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