Duchenne Patient Academy

The Duchenne Patient Academy works in partnership with leading DMD patient organisations to set a strong patient advocacy base for patient organisations and the Duchenne and Becker community at large. We do this through connecting leading experts in their fields in a week-long intensive training and capacity building programme. By connecting the DMD/BMD world, we aim to contribute a unified and strong voice to coordinate the global advocacy strategy of the community. 

Connecting over 80 patient advocates from 37 countries throughout the world, the 2019 edition of Duchenne Patient Academy can be seen as one of the leading global Duchenne and Becker MD events.

The DPA educational training aims to equip patient advocates with the tools, knowledge and experience to better represent and serve Duchenne and Becker muscular dystrophy in terms of research, care, policy-making, regulations and awareness.