EFFect

The EFFecT doctoral training network, brings together experts from nine countries, spanning academia, industry, and non-profit organizations to train the next generation of scientists. The program aims to provide 12 predoctoral researchers with the skills and knowledge required to advance antisense nucleic acid therapeutics, offering a broader context of drug development, from the initial research phases to clinical application.

As an Associated Partner in the EFFecT project, the Duchenne Data Foundation (DDF) contributes its recognized expertise in training on FAIR (Findable, Accessible, Interoperable, Reusable) data principles and advanced data management in the field of rare diseases. Building on its extensive experience in patient-driven data initiatives and international collaborations, DDF supports the training programme by equipping early-stage researchers with the necessary skills to manage and share research data responsibly and effectively. Through this role, DDF ensures that the project’s outputs align with the highest standards of data stewardship, ultimately strengthening the impact and sustainability of research in neuromuscular and other rare conditions.