George Paliouras, PhD
Chairman
Father of a boy with Duchenne Muscular Dystrophy. Computer Science researcher at NCSR “Demokritos”, Greece. Research areas: Artificial Intelligence, Machine Learning, Data Analytics, Precision Medicine.
Julio Guerra
Father of two boys, Julio has been working with Duchenne parents' associations in Brazil and abroad for 14 years. He has a background in economics and has been active in the financial market for 30 years, the last 15 years as a fund manager for Brazilian and international institutional investors. He holds or has held positions on the board of directors of companies in the asset management, mining, entertainment, logistics, and food sectors. He is an optimist about the future and believes that science is a candle in the dark.
Max Dumoulin
Board Member
Max is responsible for development of new services and offerings in collaboration with Elsevier’s academic customers. With Dutch partners he has recently developed a Rare Disease Monitor and he is also a member of the European ERDERA rare disease research alliance. Max has extensive experience in product, marketing, sales and communications. He holds a Master of Science degree in Business Administration from Erasmus University Rotterdam and a Bachelor of Arts degree in Philosophy from the University of Amsterdam.
Annick Faes
Board Member
Mother of Lander, who has Duchenne Muscular Dystrophy. A technology leader in the MedTech business, with focus on Business Technology, Patient facing solutions, Data & Analytics, Artificial Intelligence and technology supporting commercial business.
Roman Fišer
Board Member
Father of Vojta, who lives with Duchenne Muscular Dystrophy, and an active member of Parent Project Czech Republic. He has a strong professional background in IT infrastructure and systems architecture, with a proven track record in managing large-scale on-premises, cloud, and hybrid deployments. Currently, he serves as Infrastructure Manager at Czech Television.
Arjen Bergsma
Board Member
Background in biomedical engineering. He is currently working as a programme officer in medical technology at the domain of Applied and Engineering Sciences of the Dutch Research Council (NWO).
Alexandros Nousias
Data Protection & Governance, Digital Ethics & Law
Data strategy, protection and governance at Duchenne Data Foundation, Digital ethics and law at BIND project
Christos Koziaris
Information Security Officer
Responsible for carrying DDF's vision on privacy and security including the processes, governance, and staff training.
Elvina Sakellariou
Operations Officer and Research Project Manager
Implementing operational policies and procedures. Managing collaborative projects related to DMD data.
George Marzelas
Financial Controller
Coordinating the Financial Accounting functions. Track and report income & expenditures/projects spend, perform monthly accounting and control financial transactions.
Jeroen van der Werf
Data Protection Officer
Monitors the legal processing of personal data within the organisation, to ensure privacy legislation is applied correctly.
Nicoletta Madia
Project Manager
Project Manager in various awareness-raising internal projects at Duchenne Data Foundation.
Sergiu Siminiuc
Technical Officer
Building and managing Duchenne Data Repository & Duchenne Map. Collecting, optimizing & converting raw data to analyzable data